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Barbara, Mother of a young child with Alstrom Syndrome
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TECHNOLOGICAL AIDS FOR FRAGILITY

READING THE RARE DISEASES (WHAT THEY ARE - CLINICAL IMPACT) EDUCATIONAL APPLICATIONS AT SCHOOL (AGES 6-14): WHAT CHILDREN ASK FOR, HOW THEY USE THEM, AND WHY THEY DIVERSIFY

LIVING WITH A RARE DISEASE:
the bureaucratic process, obstacles and facilitations

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SOCIAL DISTANCING -RARE AND COVID DISEASES

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